Resources
When you’re navigating a Dravet syndrome diagnosis and treatment journey, it’s hard to know where to start. Our expanding collection of resources is designed to help you determine whether DIACOMIT® (stiripentol) is right for your loved one and what steps to take next.
DIACOMIT and Dravet Syndrome Resources
Learn how to access treatment with DIACOMIT, read more about Dravet syndrome, and find support groups to connect with other families affected by Dravet syndrome.
About Treatment With DIACOMIT
Caregiver DIACOMIT Discussion Guide
Considering DIACOMIT? Use this guide to help you initiate a conversation with your child’s doctors to determine if DIACOMIT is the right fit for their treatment plan.
Download Discussion Guide
Caregiver’s Guide to DIACOMIT
A quick overview of DIACOMIT, including seizure reduction results, convenient dosing information, and access programs.
Download Caregiver’s Guide
Spanish Translation: Caregiver’s Guide to DIACOMIT
Guía para Cuidadores sobre DIACOMIT
Esta guía incluye más información sobre DIACOMIT.
Medication Guide
Review important information about how to administer DIACOMIT, including the proper dosage and storage tips.
Download Medication Guide
Our Dravet Journeys
Patients and caregivers share their Dravet diagnosis and DIACOMIT treatment journeys.
Eliana’s Story
Tatiana’s journey to get her daughter properly diagnosed with Dravet syndrome was challenging. Learn how Eliana’s family worked tirelessly to find an effective seizure treatment for her.
Julia’s Story
Duane and Daryl, Julia’s parents, share how DIACOMIT has made a substantial difference for their daughter.
Kendall’s Story
Follow Kendall’s long-term seizure management journey with DIACOMIT as told by her mother and caregiver, Jill.
Healthcare Provider Perspectives
Hear from Dravet syndrome experts about their DIACOMIT experience.
James Wheless, MD
For Dr. Wheless, DIACOMIT is one of the first medications he considers after confirming a Dravet diagnosis. Find out why!
Joseph Sullivan, MD
Pediatric epileptologist Dr. Sullivan details his 10-year journey with a patient with Dravet syndrome — and how DIACOMIT has substantially reduced his patient’s seizures.
Other Dravet Syndrome Resources
Navigating Life With Dravet Syndrome Booklet
An educational resource developed with the Dravet Syndrome Foundation and Dravet physician experts to equip parents and caregivers of children with Dravet syndrome with information about this rare disease.
Download Information Booklet
Spanish Translation: Navigating Life With Dravet Syndrome Booklet
Cómo transitar la vida con el síndrome de Dravet
Biocodex, en asociación con los principales médicos especialistas
en el síndrome de Dravet y la Dravet Syndrome Foundation, creó
este folleto para que sea una guía útil para las familias y a los
pacientes con síndrome de Dravet.
Dravet and Me Comic Book
A story for siblings of children with Dravet syndrome inspired by actual families and their experiences.
Download Comic Book
Dravet Syndrome Foundation (DSF)
Founded in 2009 by a group of parents of children with Dravet syndrome, DSF supports families and funds research to find a cure.
View Foundation Website
DSF Family Network
The DSF Family Network organizes parent support groups across the U.S. It is open to families that are interested in accessing advocacy services and programs.
Join the Network
Day of Dravet
An annual event for patients and their families to come together to learn about research and treatment options.
Learn More About Day of Dravet
Epilepsy Foundation
For over 50 years, the Epilepsy Foundation has promoted education, policy, research, and systemic change to foster measurable and sustainable improvement for all people living with epilepsy.
View Epilepsy Foundation Website
National Organization for Rare Disorders
A patient advocacy organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
View NORD Website